Xeroderma Pigmentosum
A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum.
http://www.moonchildren.com
PageRank: 4/10
(Clicks: 2;
Listing added: Aug 28, 2010)
Descriptions and images of people with this genetic disorder.
http://dermatlas.med.jhmi.edu/derm/result.cfm?Diagnosis=1086057205
PageRank: 0/10
(Clicks: 0;
Listing added: Aug 28, 2010)
Summary, diagnosis, clinical description, differential diagnosis, management, genetic counseling and molecular genetics.
http://www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&part=xp
PageRank: 4/10
(Clicks: 0;
Listing added: Aug 28, 2010)
An article about this disorder in English and Italian along with some images.
http://digilander.libero.it/camdic/XERODERMA%20PIGMENTOSUM.html
PageRank: 3/10
(Clicks: 1;
Listing added: Aug 28, 2010)
Review article by Dr A Hafeez Diwan on this rare genetic disorder.
http://emedicine.medscape.com/article/1119902-overview
PageRank: 5/10
(Clicks: 0;
Listing added: Aug 28, 2010)
Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.
http://www.xps.org
PageRank: 6/10
(Clicks: 0;
Listing added: Aug 28, 2010)
UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.
http://xpsupportgroup.org.uk
PageRank: 4/10
(Clicks: 0;
Listing added: Aug 28, 2010)
